Dialisis Buah Pinggang FAQS

Having kidney disease isn’t exactly the life we all imagined we’re going to live. Finding out that you have to go through countless dialysis treatments is truly disconcerting and frightening all at once. For both the patients and their loved ones, anxious thoughts such as “What is dialysis? Will it hurt?” “Will I be attached to a machine for the rest of my life?” “How will my family be affected? How will my life change?” easily come about.

However, all these fears can slowly be taken away once you familiarise yourself with the topic of kidney dialysis. In this page, we hope to provide useful answers to your concerns and take away the stigma revolving around kidney dialysis.

As a starter, we like our patients to know that although kidney failure is irreversible, going on dialysis treatment is not “the end” of their lives. As a matter of fact, dialysis is a life saving treatment.  Approaching dialysis with a positive outlook and committing to make necessary lifestyle adjustments will help you continue to live well and lead productive a life.

Are you about to start your first dialysis treatment at our dialysis centre? That’s great! You are one step closer to coping with your kidney disease. Some people feel better within the first month of dialysis while others take a few months more. As the days come closer to your first kidney dialysis session, you will have some questions and anxious moments. Don’t worry, that is just normal. The best thing to do is learn as much as you can to prepare yourself.

Q: How does dialysis feel?

A: At the beginning, needles may cause a pinch of pain going in, but the pain should stop after that. Dialysis itself shouldn’t be painful. However, because the effects of kidney dialysis vary from one person to another, uncomfortable side effects such as nausea, vomiting, itchiness and muscle cramps may occur. If this happens, kindly inform your healthcare team. This is your first dialysis session and adjustments may have to be made with your treatment plan to relieve your discomfort and ensure that an optimal treatment is delivered to you.

Q: How long does a dialysis session take?

A: Each treatment takes about 4 to 5 hours and is carried out thrice a week on alternate days.

Q: Do I need to get into a special diet?

A: Yes, but this doesn’t mean that you can’t have delicious food anymore. Rather, you will have to be careful with your nutrient intake.

Dialysis diet varies depending on the condition of your kidneys and the modality of your kidney dialysis treatment. Your healthcare team will work with you on this and let you know what specific diet program you should follow. To give you a general idea, dialysis diets usually focus on controlling specific nutrients such as sodium, protein, potassium, and phosphorus, as they affect the overall effectiveness of your treatment and well being.

Q: Can I still travel while I’m on dialysis?

A: Yes, most patients are able to travel safely while undergoing treatment. As a matter of fact, going on a quick getaway and getting a much-needed vacation is a great motivator. Before packing your bags, you will have to make arrangements with a dialysis centre with regards to your travel destination. To ensure that you will still be able to continue receiving adequate kidney dialysis, your healthcare team will assist you with the arrangements. You will also have to check with your team first if you are stable enough to travel.

Q: Should I quit exercising once I start with my dialysis?

A: No, don’t quit exercising. You are encouraged to get up and exercise. Keeping yourself active will make you feel stronger, increase your endurance, and keep fatigue at bay. Patients who suffer from sleep deprivation during treatments say that doing some exercise help them get a good night’s sleep and are more able to cope with their treatments. Again, check with your healthcare team on which type of exercise is best suited for you.

Q: Can I get pregnant while on dialysis?

A: As conditions vary from one woman to another, the answer depends. Circumstances are complex when kidney disease is added to the picture. You and your partner have to decide on the risk you’re willing to take. It’s best to consult with your doctor as well to ensure you are safe to carry a baby while on kidney dialysis.

TIPS ON PREPARING FOR YOUR FIRST DIALYSIS SESSION

You’re about to embark on a life-changing journey. What needs to be prepared?

    • Pay a visit to the centre: You will be spending at least 12 hours per week in your chosen centre. Visiting it before your first treatment can help you prepare for what you are about to experience. It is important to ask as many questions as possible while you are there. You can never ask too many questions when it comes to starting kidney dialysis.
    • Be on time: Arrive at the centre at least 15 minutes ahead of your appointment and let your healthcare team know you have arrived.
    • Wear comfortable clothes: Because you’ll be spending a couple of hours in a dialysis centre during each kidney dialysis session, it is important to dress comfortably. Also, wear a clothing that will make it easy for your healthcare team to reach your access, and avoid wearing something that can cause an interruption to your dialysis session.
    • Bring something to munch on: Especially if you are diabetic, it will be helpful to bring something that you can snack on, so you won’t have to worry about getting hungry.
    • Bring a small pillow and a blanket: If these can make you comfortable during your kidney dialysis session, feel free to do so. It can help you feel a little more cozy, warm, and relaxed during the treatment.
    • Pack the following ahead of time: Treat the following as a checklist for the necessary documents you need to bring for your first session with us. These documents will provide us with important clinical, medication, and funding information for us to plan an optimal and stress-free course of treatment for you.
      • Memo from your hospital
      • Hospital discharge summary
      • Last 3 kidney dialysis treatment records (if there’s any)
      • List of all your medications
      • Medisave balance statement
      • Insurance policy and plan
      • Identification card
    • Bring something that will keep you busy: You’re going to be spending a significant amount of time in the dialysis centre during your kidney dialysis sessions. The good thing is, you can do other things so long they won’t hinder your treatment. Your dialysis sessions are a great time to tick-off entries from your to-do list—read a new book, listen to a podcast, study, or catch up with family and friends on social media.

Kidney dialysis may not be the best, most exciting thing in your life right now, but it is certainly not the worst. Changes are inevitable, because adjustments have to be made to facilitate dialysis in your life. However, it does not mean you have to put your life ‘on hold’. Despite the restrictions in your time, stay involved as much as practically possible with your other interests such as family activities, work, education, and leisure pursuits.

Adakah anda akan memulakan rawatan dialisis pertama di pusat dialisis kami? Itu hebat! Anda adalah satu langkah yang lebih dekat untuk mengatasi penyakit buah pinggang anda. Sesetengah orang berasa lebih baik dalam bulan pertama dialisis manakala yang lain mengambil beberapa bulan lagi. Apabila hari semakin dekat dengan sesi dialisis buah pinggang pertama anda, anda akan mempunyai beberapa soalan dan keadaan cemas. Jangan risau, itu hanya normal. Perkara terbaik untuk dilakukan ialah belajar seberapa banyak yang anda mampu untuk menyediakan diri anda.

S: Bagaimana rasa dialisis?

J: Pada mulanya, jarum boleh menyebabkan kesakitan, tetapi kesakitan tersebut akan hilang selepas itu. Dialisis itu sendiri tidak akan menyakitkan. Walau bagaimanapun, kerana kesan dialisis buah pinggang berbeza dari satu orang ke yang lain, kesan sampingan yang tidak selesa seperti mual, muntah, kegatalan dan kekejangan otot boleh berlaku. Jika ini berlaku, sila beritahu pasukan kesihatan anda. Ini adalah sesi dialisis pertama anda dan pelarasan mungkin perlu dibuat mengikut pelan rawatan anda untuk melegakan ketidakselesaan anda dan memastikan bahawa rawatan yang optimum disampaikan kepada anda.

Q: Berapa lama sessi dialisis di ambil?

J: Setiap rawatan mengambil masa 4 hingga 5 jam dan dijalankan tiga kali seminggu pada selang hari.

S: Adakah saya memerlukan diet khas?

J: Ya, tetapi ini tidak bermakna anda tidak boleh lagi menikmati makanan yang lazat. Sebaliknya, anda perlu berhati-hati dengan pengambilan nutrien anda.

S: Bolehkah saya bercuti semasa saya menjalani dialisis?

J: Ya, kebanyakan pesakit dapat melakukan perjalanan dengan selamat semasa menjalani rawatan. Hakikatnya, percutian singkat amat diperlukan kerana ia akan memberi motivasi yang baik. Sebelum menyediakan beg anda, anda perlu membuat temujanji dengan pusat dialisis berkaitan tentang destinasi perjalanan anda. Untuk memastikan bahawa anda masih dapat terus menerima rawatan dialisis buah pinggang yang mencukupi, pasukan kesihatan anda akan membantu anda dengan membuat temujanji. Anda juga perlu merujuk dengan pasukan anda terlebih dahulu jika anda cukup stabil untuk melakukan perjalanan.

S:Adakah saya perlu berhenti bersenam sebaik sahaja memulakan dialisis?

J: Tidak, jangan berhenti bersenam. Anda digalakkan untuk bangkit dan bersenam. Menjaga diri anda secara aktif akan membuat anda berasa lebih kuat, meningkatkan ketahanan anda, dan mengelakkan keletihan. Pesakit yang mengalami kekurangan tidur semasa rawatan mengatakan bahawa melakukan senaman membantu mereka mendapatkan tidur malam yang baik dan lebih mampu mengatasi rawatan mereka. Sekali lagi, periksa dengan pasukan penjagaan kesihatan anda di mana jenis senaman paling sesuai untuk anda.

S: Bolehkah saya hamil semasa dialisis?

J: Seperti keadaan berbeza dari seorang wanita dengan yang lain, jawapannya bergantung. Keadaan adalah kompleks apabila melibatkan penyakit buah pinggang . Anda dan pasangan anda perlu menentukan risiko yang anda ingin ambil. Adalah lebih baik untuk berunding dengan doktor anda juga untuk memastikan anda selamat untuk membawa bayi semasa dialisis buah pinggang.

TIP UNTUK MENYEDIAKAN SESI DIALISI PERTAMA ANDA

Anda akan memulakan perjalanan hidup yang berubah-ubah. Apa yang perlu disediakan?

    • Membuat lawatan ke pusat: Anda akan menghabiskan sekurang-kurangnya 12 jam seminggu di pusat pilihan anda. Mengunjungi sebelum rawatan pertama anda dapat membantu anda mempersiapkan diri untuk pengalaman anda. Adalah penting untuk bertanya sebanyak mungkin soalan semasa anda berada di sana. Anda tidak boleh menanyakan terlalu banyak pertanyaan ketika datang untuk memulakan dialisis buah pinggang.
    • Apabila tiba masanya: Tiba di pusat sekurang-kurangnya 15 minit awal dari temujanji anda dan biarkan pasukan penjagaan kesihatan anda tahu anda telah sampai.
    • Pakai pakaian yang selesa: Kerana anda akan menghabiskan beberapa jam di pusat dialisis semasa sesi dialisis buah pinggang, adalah penting untuk berpakaian dengan selesa. Juga, memakai pakaian yang akan memudahkan pasukan penjagaan kesihatan anda mencapai akses anda, dan elakkan memakai sesuatu yang boleh menyebabkan gangguan pada sesi dialisis anda.
    • Bawalah sesuatu untuk dikunyah: Terutamanya jika anda menghidap diabetes, ianya akan membantu jika membawa sesuatu yang boleh dikunyah, jadi anda tidak perlu risau tentang kelaparan.
    • Bawa bantal kecil dan selimut: Ini membolehkan anda merasa selesa semasa sesi dialisis buah pinggang anda, anda bebas melakukannya. Ia boleh membantu anda berasa lebih selesa, hangat, dan santai semasa rawatan.
    • Pek perkara yang berikut sebelum ini: Berikut adalah senarai semak untuk dokumen yang diperlukan dan yang perlu anda bawa untuk sesi pertama anda bersama kami. Dokumen-dokumen ini akan memberi kita maklumat penting klinikal, ubat-ubatan, dan pembiayaan untuk merancang kursus rawatan yang optimum dan tanpa memberi tekanan kepada anda.
      • Memo dari hospital anda
      • Ringkasan discaj dari hospital
      • Rekod rawatan dialisis 3 kali terakhir (jika ada)
      • Senarai semua ubat anda
      • Dasar dan pelan insurans
      • Kad pengenalan
  • Bawa sesuatu yang akan membuat anda sibuk: Anda akan menghabiskan banyak masa di pusat dialisis semasa sesi dialisis buah pinggang anda. Perkara yang baik ialah, anda boleh melakukan perkara-perkara lain selagi tidak akan menghalang rawatan anda. Sesi dialisis anda adalah masa yang tepat untuk menandakan penyertaan anda dari senarai tugasan anda-membaca buku baru, mendengar podcast, belajar, atau lebih rapat dengan keluarga dan rakan-rakan di media sosial.

Dialisis buah pinggang mungkin bukan perkara terbaik, paling menarik dalam hidup anda sekarang, tetapi ia bukanlah perkara yang paling teruk. Perubahan tidak dapat dielakkan, kerana pelarasan perlu dibuat untuk memudahkan dialisis dalam hidup anda. Bagaimanapun, ini tidak bermakna anda perlu meletakkan hidup anda seperti ‘ditahan’. Walaupun terdapat sekatan dalam masa anda, terus terlibat sebanyak praktikal mungkin dengan kepentingan lain seperti aktiviti keluarga, kerja, pendidikan, dan aktiviti rekreasi.

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